Children & Youth

Palliative Care for Children and Youth with Chronic Disease

Project Lead: Gerri Frager ()

Trainees: Jessica Dooley, Jennifer Wililams, Patricia Murray, Rebecca Earle

Objectives: To carry out qualitative research and establish population based indicators of quality end of life care relevant to infants, children, and youth.

A play resulting from a journal kept by Ed, a 16-year old with advanced bone cancer, during his last four months of life. The play was commissioned by Dr. Gerri Frager, Medical Director of the IWK鈥檚 Pediatric Palliative Care Service and 美女做爱鈥檚 Medical Humanities-HEALS Program.

• [PDF]
• Qualitative analysis of Ed's journal by Shauna Flavelle during her pediatric residency at 美女做爱:

Reports

Jennifer Williams, 2010
鈥� Master Thesis - Neonatal Palliative Care: Inter-Professional Communication and Collaboration

Alison Zwaagstra, 2009
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Presentations [PDFs]

Alix Carter, Rebecca Earle, et al., 2011
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Posters [PDFs]

Jessica D. Dooley, 2007
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Publications

Carter A.J.E., Earle, R., Gregoire, M-C., MacConnell, G., & Frager, G. (2012) Breaking down silos: Building better palliative care.听 Canadian Journal of Emergency Medicine, 14(3): abstract.

Related and relevant publications

Holly R.L. Richardson, 2013
鈥� , PhD Thesis. 美女做爱, June 2013.

Widger, K. & Wilkins, K. (2004) What are the key components of quality perinatal and pediatric end-of-life care? A literature review. Journal of Palliative Care, 20, 105-112.